Seminar: Juvenile Neuronal Ceroid Lipofuscinosis (JNCL) and Education

10 - 12 known diagnoses will lead to very early onset of dementia. Juvenile Neuronal Ceroid Lipofuscinosis (JNCL), also named as “Spielmeyer-Vogt sykdom” in the Nordic countries, is one of these diagnoses. There have been very few studies of non-medical interventions for individuals with JNCL. Studies on education and JNCL is almost non-existing. Very early onset of dementia is further an unknown area in education. These were the main causes behind the research project JNCL and Education project (2014 - 2017) where Norway, Denmark, Finland, Germany, Scotland, England and USA participated. The main sponsor of the project is Erasmus+ (EU).

The seminar will include presentations of some core findings from the project followed by questions and a debate. The conclusions from the seminar will be included in the final project report. The main theme for the seminar is: How can Education and other non-medical service providers ensure best possible education, learning and development for learners with JNCL? 

Time: 29th May 2017 10-15.00

Place: Statped midt, Søbstadveien 65, 7088 Heimdal, Trondheim

Find more information about the seminar here